Patients and Families
The Open Platform for Rare Diseases (OPFORD) is a one-stop digital resource for rare diseases in India. We understand the many complex issues of rare diseases in India and the severe impact it has on patients and families right from locating the right disease-specific information to finding information on doctors and geneticists. We want OPFORD to fill this major gap in finding the “right information at the right time.”
We have a list of rare diseases prevalent in India in which you can find all information about the disease, signs and symptoms, diagnosis, available treatment and drugs and other support information. In this section, you can also locate doctors, hospitals, clinical geneticists, testing centres and patient support groups.