Global incidence of Hemophilia A is 1 in 5000 and Hemophilia B is 1 in 30,000
The global incidence of Von Willebrand disease is 1 in 100 to 1 in 10,000 individuals
Care for Bleeding Disorders in developing countries is poor due to unaffordable treatment and low medical facilities
Around 250 million people globally carry genetic mutations for Sickle Cell Disease and other Hemoglobin Disorders
Beta-Thalassemia is most common in the Mediterranean, African and South Asian regions
Every year, nearly 300,000 infants are born with a major Hemoglobin Disorder across the world
The Disability Act India, 2016 includes Thalassemia, Sickle Cell Disease and Hemophilia
OPFORD.ORG is a digital resource center of the OPFORD Foundation which serves as an information repository and provides networking support for people with orphan diseases. Our aim is to enable and empower patients (and their caregivers) by connecting them to curated information resources. Our focus is primarily on inherited genetic disorders with a specific emphasis on bleeding disorders and hemoglobin disorders.
OPFORD also has a dedicated helpline for patients with bleeding and hemoglobin disorders. Our counselors are available to help address any queries related to the diagnosis and treatment of these disorders as well as providing information that can help patients (and caregivers) better manage their condition. Please note that the OPFORD Helpline is only intended as a counseling service to help patients better understand their condition and cannot provide medical advice.
You can reach the OPFORD Helpline at +91 77956 65149.
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