OPFORD Helpline

Call the OPFORD Foundation Helpline to get information and support on Thalassemia, Sickle Cell Anemia and Hemophilia. Reach out to us for health support or to just talk to us about your condition. The OPFORD Helpline is available from 9.30 AM to 6.30 PM from Monday to Friday, except on public holidays.

 +91 77956 65149

 

What is the OPFORD Helpline?

The OPFORD Helpline is a dedicated helpline for people with inherited blood disorders like Thalassemia, Sickle Cell Anemia and Hemophilia. The helpline is open to patients, families and anybody else who wants to know about these disorders or worried about their genetic risks. 
Call our helpline to reach our trained, expert advisors who have deep knowledge about these disorders. We can give you information and knowledge about the condition, help you proactively take charge of your health and help you plan actions to improve your health. Or you can just call us and talk to us about your challenges with the condition and we will be happy to lend a ear. Peer counselors who have lived experiences of the condition are also available to hear you out and support you.  Whatever the issue may be, you are not alone in this journey. We are there to support you.

What about confidentiality?

OPFORD Helpline service is completely confidential. We do not disclose any information shared with us or share data with any other individual or entity. 

What type of questions can be asked?

OPFORD Helpline service is primarily focused on helping you manage your condition better and tackle the practical challenges faced because of the condition. You can ask questions on a range of topics like:

Medical and health-related: 

  • Optimal self-management and self-care
  • Managing the complications of the condition
  • Diagnostic and routine tests
  • Current treatment options and newer therapies
  • Healthy eating and exercise 

Psycho-social issues:

  • Acceptance and reconciliation with co-morbidities (example, accepting a diagnosis of issues like HIV or hepatitis)
  • Staying positive during challenging medical disruptions (example, dealing with sudden hospitalization situations)

Lifestyle and living with the condition: 

  • Lifestyle issues and disruptions caused by the condition
  • Suitable careers and employment
  • Dating, marriage, and childbearing
  • Managing the condition while studying, working traveling
  • Disclosing the condition at school, college, work or with friends
  • Dealing with disablism and discrimination at study, work or in social circles

Information and services-related: 

  • Questions about health insurance
  • Questions about India’s Rights of People with Disabilities Act, 2016

Our counselors understand the challenges of living with a chronic genetic disorder. Call us even if it is just to vent your feelings or share your thoughts. We are here for you.